Happy Birthday to Me! I couldn’t have asked for a greater gift than seeing my child happy and excelling toward her goals. Today began the second week of her intensive physical therapy. We arrived a couple minutes late, so I drove her right up to the door and asked her to take her cane and go ahead and walk inside. I did this as a test, because she has never had the confidence to do anything like this independently (similar to the carpool scenario at school.) She opened the door without saying a word, left her cane in the car, and walked into the building (up an incline and with difficulty) totally independently! All of the receptionists are baffled by watching her determination.
She had the best day yet. She worked hard all morning carrying her backpack both independently and while using her cane; practicing with the small crutches that were introduced to her last week, tolerating stretching, working on riding a “normal” bike with training wheels, etc. We ordered a new insert for her right shoe that we hope she can tolerate better. There was a “lunch and learn” inservice that was going to be done today that may be something we can try with Jian to help her gait. I have requested copies of her nerve conduction study so her therapists can get a better understanding of what we are dealing with on the left side. I have scheduled a follow up appointment with her orthopedist who now is working with a new Gait Lab that could be beneficial to her. As long as she is willing to do the work, I am willing to give her every opportunity that may help. When it was time to go, I told her I would bring the car to the door, as it was parked really far away. I was pushing my luck to ask her to come outside with her cane while wearing her backpack. We will get there, though. She fell sound asleep on the way home and will go back again tomorrow. So thankful that things are moving in the right direction!